 I am an East Coast expatriate hiding out in the Midwest... I am an urban gal living in the suburbs and occasionally hiding in the country I am a yoga practitioner, fitness enthusiast, believer in the mind-body-spirit connection... I am a mid-life "revert" to the Roman Catholic faith in which I was raised and which has become an enormous source of support, encouragement, inspiration, and joy in my life... I am a mom, sister, daughter, and wife... I am an explorer; adventurous and curious about the world and people around me... I am educated in the formal sense but I gain insight through everyday living... I created this blog at a time of great fear and apprehension in my life. I chose to sustain it because of the discoveries about myself and the world around me that it has revealed. What you can expect to find here: the documentation of a love-hate relationship with the greater Philadelphia area reminiscing about the good-ole-days (the 80's!) complaints about my various ailments and injuries, both real and imagined pictures and stories of gardening, decorating, shopping, sewing my love of irony links to kooky news stories way too much scatological musing for sane people
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Monday, October 10, 2005
For the record, I am heavily disliking that cell phone commercial stating how famous rappers, had they not been beeped on their celly-cells would have ended up in some "other" career, like ballet teacher, pet therapist...and "thank heaven's they got tagged on their cell phones" Say what?!?! That is the nuttiest thought process I've ever heard, and heck, I actually dig alot of rap/hiphop. As we used to say back in the 80's/early 90's: That sh*t is WACK!
On another note, "where you at" is a pretty valid interrogative directed at me.
I've been spending alot of time reading and posting notes on a discussion board for parents of babies/kids with DS (down syndrome .) Its been totally reassuring (although I likely have more confidence about this issue than any ole' cellphone-toting-baby-phat-wearin'-playah out there!)
I still have not gotten the issue of who the heck is delivering my baby staightened out yet but late last week I sent (imho) an articulate, yet heartfelt email to my current ob/gyne practice (not the "high risk" perinatologists but my "normal" doc/midwife practice) explaing my displeasure in the perinatology group, my desire to give birth at a higher-level nicu hospital, and my interest in getting a referral for an mri or ct scan with a pediatic neurologist to get more info about the baby's apparent ventricular dialtion in his brain. Oh, I haven't mentioned it but I later found out, after asking my regular doc's office for the info, that his dialtion is only at 12mm. Normal is 10mm or less. The perinatologist who told me that my son is going to be 'more retarded" and has "hydrocephaly that will need shunting" was not wholly correct in his pronouncement. Furhter research on the part of me, tenacious mama bear that I am, noted that ventricular dilation, as measured on ultrasound, is considered "mild ventriculomegaly" if its measuring between 10 and 15 mm. Sometimes this is referred to as "mild hydrocephaly" which is somewhat of a misnomer. Unless an mri or other diagnostic actully finds elevated CSF (cerebral spinal fluid) pressure readings, thenthe dialtion is more or less an anomaly. Its also imporant to note that measurements of 12mm or less usually cause ZERO problem (no brain/neurological damage). AND that incrsed dialtion is more common in MALE babies (check!) and trisomy 21 babies (double-check!). So, as long as things stay the same or get better (which it certainly cna do) and as long as there is no evidence of pressure, this whole brain part of the overall health equasion is just something to be aware of and nothing more.
So...guess what? Do you know I asked repeatedly during that 21wk level II Ultrasound for the ventricular mesurements but the doc would not tell me?!?! I also asked to see my full amnio report and was DENIED. These dopey eugenicists don't know WHO they are up against! hahahah.
So when I asked my doc for the measurements and they told me "ventricular measurement of 12mm and no additional brain anomaly or head enlargement" I was both HAPPY (for baby's sake) and IRATE that yet again I was given this horrible, and clearly misinformed gloom-and-doom prognosis from an obviously risk-adverse chicken-sh*t doctor. Cripes.
Lucky for me, I have the support of my family, all my blogpals, my friends from Church, neighbors, and of course this new group of DS parents. Not only that, I learned that Ted Kennedy recently sponsored a bill to prevent such blatantly biased yet medically incorrect info from being directed at women who undergo prenatal testing. You can read about this bill - which has bipartisan support, here.
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